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CHAPTER 4226. EARLY INTERVENTION SERVICES
GENERAL PROVISIONS Sec.
4226.1. Policy.
4226.2. Purpose.
4226.3. Applicability.
4226.4. Penalties for noncompliance.
4226.5. Definitions.
4226.6. Waiver of regulations.
FINANCIAL MANAGEMENT
4226.11. Financial administration.
4226.12. Medicaid waiver funds.
4226.13. Payor of last resort.
4226.14. Documentation of other funding sources.
4226.15. Interim payments.
GENERAL REQUIREMENTS
4226.21. Nondelegation of responsibilities.
4226.22. Eligibility for early intervention services.
4226.23. Eligibility for Medicaid waiver services.
4226.24. Comprehensive child find system.
4226.25. At-risk children.
4226.26. Tracking system.
4226.27. Monitoring responsibilities.
4226.28. Self-assessment reviews.
4226.29. Preservice training.
4226.30. Annual training.
4226.31. Child Protective Services Law.
4226.32. Reporting and record retention.
4226.33. Traditionally underserved groups.
4226.34. Local interagency coordinating council.
4226.35. Confidentiality of information.
4226.36. Child records.
PERSONNEL
4226.51. Provision of service coordination.
4226.52. Service coordination activities.
4226.53. Service coordinator requirements and qualifications.
4226.54. Early interventionist responsibilities.
4226.55. Early interventionist qualifications.
4226.56. Effective date of personnel qualifications.
EVALUATION AND ASSESSMENT
4226.61. MDE.
4226.62. Nondiscriminatory procedures.
IFSPs
4226.71. General.
4226.72. Procedures for IFSP development, review and evaluation.
4226.73. Participants in IFSP meetings and periodic reviews.
4226.74. Content of the IFSP.
4226.75. Implementation of the IFSP.
4226.76. Provision of services before MDE is completed.
4226.77. Transition from early intervention services.
PROCEDURAL SAFEGUARDS
4226.91. General responsibility for procedural safeguards.
4226.92. Parental consent.
4226.93. Parental right to decline service.
4226.94. Opportunity to examine records.
4226.95. Prior notice.
4226.96. Surrogate parents.
4226.97. Conflict resolution.
4226.98. Mediation.
4226.99. Due process procedures.
4226.100. Parental rights in due process hearings.
4226.101. Impartial hearing officer.
4226.102. Convenience of proceedings; timelines.
4226.103. Status of a child during proceedings.Authority The provisions of this Chapter 4226 issued under the Early Intervention Services System Act (11 P. S. § § 875-102875-503); and section 201(2) of the Public Welfare Code (62 P. S. § 201(2)), unless otherwise noted.
Source The provisions of this Chapter 4226 adopted February 28, 2003, effective July 1, 2003, 33 Pa.B. 1051, unless otherwise noted.
Cross References This chapter cited in 55 Pa. Code § 4305.11 (relating to exempt services).
GENERAL PROVISIONS
§ 4226.1. Policy.
Early intervention services and supports are provided to families and infants and toddlers with disabilities and at-risk children to maximize the childs developmental potential. Service planning and delivery are founded on a partnership between families and early intervention personnel which is focused on meeting the unique needs of the child, addressing the concerns and priorities of each family and building on family and community resources.
§ 4226.2. Purpose.
This chapter establishes administrative, financial and eligibility requirements, standards for personnel and service delivery, and procedural protections for the Departments early intervention program.
§ 4226.3. Applicability.
This chapter applies to county MH/MR programs that provide early intervention services and to public and private service providers and agencies that contract with a county MH/MR program to provide early intervention services.
§ 4226.4. Penalties for noncompliance.
(a) The failure to comply with this chapter so that needs of at-risk children and infants and toddlers with disabilities are not being adequately met, shall subject the county MH/MR program to penalties consistent with section 512 of the Mental Health and Mental Retardation Act of 1966 (50 P. S. § 4512), including loss or delay of early intervention funding to the county MH/MR program.
(b) Appeals from Department action taken in accordance with subsection (a) shall be made by the county MH/MR program in accordance with 2 Pa.C.S. § § 501508 and 701704 (relating to the Administrative Agency Law).
§ 4226.5. Definitions.
The following words and terms, when used in this chapter, have the following meanings, unless the context clearly indicates otherwise:
AssessmentThe ongoing procedures used throughout the period of a childs eligibility under this chapter to identify the following:(i) The childs unique strengths and needs and the services appropriate to meet those needs.
(ii) The resources, priorities and concerns of the family and the supports and services necessary to enhance the familys capacity to meet the developmental needs of its child.
Assistive technology deviceAn item, piece of equipment or product system, whether acquired commercially off the shelf, modified or customized, that is used to increase, maintain or improve the functional capabilities of infants and toddlers with disabilities.
Assistive technology serviceA service that directly assists an infant or toddler with a disability or the infant or toddlers family in the selection, acquisition or use of an assistive technology device. The term includes:(i) The evaluation of the needs of an infant or toddler with a disability, including a functional evaluation in the infant or toddlers customary environment.
(ii) Purchasing, leasing or otherwise providing for the acquisition of assistive technology devices by infants and toddlers with disabilities.
(iii) Selecting, designing, fitting, customizing, adapting, applying, maintaining, repairing or replacing assistive technology devices.
(iv) Coordinating and using other therapies, interventions or services with assistive technology devices, such as those associated with existing education and rehabilitation plans and programs.
(v) Training or technical assistance for an infant or toddler with a disability or, if appropriate, that infant or toddlers family.
(vi) Training or technical assistance for professionals, including individuals providing early intervention services, or other individuals who provide services to or are otherwise substantially involved in the major life functions of infants and toddlers with disabilities.
At-risk childAn individual under 3 years of age:(i) Whose birth weight is under 1,500 grams.
(ii) Who was cared for in a neonatal intensive care unit.
(iii) Who was born to a chemically dependent mother and referred by a physician, health care provider or parent.
(iv) Who is seriously abused or neglected, as substantiated and referred by the county children and youth agency under 23 Pa.C.S. Chapter 63 (relating to the Child Protective Services Law).
(v) Who has confirmed dangerous levels of lead poisoning as set by the Department of Health.
Audiology servicesIncludes the following:
(i) Identification of hearing loss, using audiological screening techniques.
(ii) Determination of the range, nature and degree of hearing loss and communication functions, by use of audiological evaluation procedures.
(iii) Referral for medical and other services necessary for the habilitation or rehabilitation of hearing loss.
(iv) Provision of auditory training, aural rehabilitation, speech reading and listening device orientation and training, and other services to address hearing loss.
(v) Provision of services for prevention of hearing loss.
(vi) Determination of the need for individual amplification, including selecting, fitting and dispensing appropriate listening and vibrotactile devices, and evaluating the effectiveness of those devices.
ChildAn individual under 3 years of age.
County MH/MR programAn MH/MR program established by a county or two or more counties acting in concert which includes a complex array of services providing a continuum of care in the community for infants and toddlers with disabilities and at-risk children.
Culturally competentConducted or provided in a manner that shows awareness of and is responsive to the beliefs, interpersonal styles, attitudes, language and behavior of children and families who are referred for or receiving services.
DepartmentThe Department of Public Welfare of the Commonwealth.
Early intervention servicesDevelopmental services that meet the requirements of this chapter and:(i) Are provided under public supervision.
(ii) Are provided at no cost to families.
(iii) Are designed to meet the developmental needs of an infant or toddler with a disability and the needs of the family related to enhancing the infant or toddlers development in one or more of the following areas:
(A) Physical development, including vision and hearing.
(B) Cognitive development.
(C) Communication development.
(D) Social or emotional development.
(E) Adaptive development.
(iv) Are provided in conformity with an IFSP.
(v) Include, but are not limited to, the following:
(A) Family training, counseling and home visits.
(B) Special instruction.
(C) Speech-language pathology services.
(D) Occupational therapy.
(E) Physical therapy.
(F) Psychological services.
(G) Service coordination.
(H) Medical services only for diagnostic or evaluation purposes.
(I) Early identification and assessment services.
(J) Health services necessary to enable an infant or toddler with a disability to benefit from other early intervention services.
(K) Social work services.
(L) Vision services.
(M) Assistive technology devices and assistive technology services.
(N) Transportation and related costs.
(O) Audiology services.
(P) Nursing services.
(Q) Nutrition services.
(vi) Are provided by qualified personnel, including, but not limited to, the following:
(A) Special educators.
(B) Speech-language pathologists.
(C) Occupational therapists.
(D) Physical therapists.
(E) Psychologists.
(F) Social workers.
(G) Nurses.
(H) Nutritionists.
(I) Family therapists.
(J) Orientation and mobility specialists.
(K) Pediatricians and other physicians.
(L) Early interventionists.
(M) Service coordinators.
(N) Audiologists.
EvaluationProcedures used by qualified personnel to determine a childs initial and continuing eligibility for tracking or early intervention services.
Family training, counseling and home visitsServices provided by social workers, psychologists or other qualified personnel, as appropriate, to assist the family of an infant or toddler with a disability in understanding the special needs of and enhancing the development of the infant or toddler.
Health servicesServices necessary to enable an infant or toddler with a disability to benefit from other early intervention services, while an infant or toddler is receiving another early intervention service.(i) The term includes the following:
(A) Clean intermittent catheterization, tracheostomy care, tube feeding, the changing of dressings or colostomy collection bags.
(B) Consultation by physicians with other service providers concerning the special health care needs of an infant or toddler with a disability that will need to be addressed in the course of providing other early intervention services.
(ii) The term does not include the following:
(A) Services that are surgical in nature (such as cleft palate surgery, surgery for club foot or the shunting of hydrocephalus).
(B) Services that are purely medical in nature (such as hospitalization for management of congenital heart ailments, or the prescribing of medicine or drugs for any purpose).
(C) Devices necessary to control or treat a medical condition.
(D) Medical-health services (such as immunizations and regular well-baby care) that are routinely recommended for all children.
IFSPIndividualized family service planA written plan for providing early intervention services to an infant or toddler with a disability and the infant or toddlers family.
Infant or toddler with a disabilityAn individual under 3 years of age who needs early intervention services because the individual meets one or more of the eligibility criteria specified in § 4226.22(a) (relating to eligibility for early intervention services).
LocationThe actual place or places where a service is or will be provided.
MH/MRMental health/mental retardation.
Medical services only for diagnostic or evaluation purposesServices provided by a licensed physician to determine a childs developmental status and need for early intervention services.
MethodHow a service is provided, including whether the service is given directly to the infant or toddler with a disability, with family or child care participation or without family or child care participation, or whether the service is provided as instruction to the family or caregiver.
MultidisciplinaryInvolving two or more disciplines or professions in the provision of integrated and coordinated services, including evaluation and assessment activities and development of the IFSP.
Native languageThe language or mode of communication normally used by the parent of a child. If the parent is deaf or blind, or has no written language, the mode of communication is that normally used by the parent (such as sign language, Braille or oral communication).
Natural environmentsSettings that are natural or normal for a childs age peers who have no disabilities, including the home and community settings in which children without disabilities participate.
Nursing servicesIncludes the following:(i) Assessing health status for the purpose of providing nursing care, including the identification of patterns of human response to actual or potential health problems.
(ii) Providing nursing care to prevent health problems, restore or improve functioning, and promote optimal health and development.
(iii) Administering medications, treatments and regimens prescribed by a licensed physician.
Nutrition servicesIncludes the following:(i) Conducting individual assessments in the following:
(A) Nutritional history and dietary intake.
(B) Anthropometrical, biochemical and clinical variables.
(C) Feeding skills and feeding problems.
(D) Food habits and food preferences.
(ii) Developing and monitoring appropriate plans to address the nutritional needs of infants and toddlers with disabilities, based on the findings of the assessments in subparagraph (i).
(iii) Making referrals to appropriate community resources to carry out nutrition goals.
Occupational therapyServices to address the functional needs of an infant or toddler with a disability related to adaptive development, adaptive behavior and play, and sensory, motor and postural development, which are designed to improve the functional ability of the infant or toddler to perform tasks in home, school and community settings, and include the following:(i) Identification, assessment and intervention.
(ii) Adaptation of the environment, and selection, design, and fabrication of assistive and orthotic devices to facilitate development and promote the acquisition of functional skills.
(iii) Prevention or minimization of the impact of initial or future impairment, delay in development or loss of functional ability.
ParentA natural or adoptive parent; a guardian; a legal custodian, excluding a county children and youth agency; a person acting as a parent of a child (such as a grandparent or stepparent with whom the child lives); or a surrogate parent, including a foster parent, appointed under § 4226.96 (relating to surrogate parents).
Personally identifiable informationInformation that would make it possible to identify a particular child or family, including the following:(i) The name of the child, the childs parent or other family member.
(ii) The address of the child or family.
(iii) A personal identifier, such as the childs or parents Social Security number.
(iv) A list of personal characteristics or other information that would make it possible to identify the child or family with reasonable certainty.
Physical therapyServices to address the promotion of sensorimotor function of an infant or toddler with a disability through enhancement of musculoskeletal status, neurobehavioral organization, perceptual and motor development, cardiopulmonary status and effective environmental adaptation, which include the following:(i) Screening, evaluation and assessment to identify movement dysfunction.
(ii) Obtaining, interpreting and integrating information appropriate to program planning to prevent, alleviate or compensate for movement dysfunction and related functional problems.
(iii) Providing individual and group services or treatment to prevent, alleviate or compensate for movement dysfunction and related functional problems.
Psychological servicesIncludes the following:(i) Administering psychological and developmental tests and other assessment procedures.
(ii) Interpreting assessment results.
(iii) Obtaining, integrating and interpreting information about child behavior, and child and family conditions related to learning, mental health and development.
(iv) Planning and managing a program of psychological services, including psychological counseling for infants and toddlers with disabilities and their parents, family counseling, consultation on child development, parent training and education programs.
QualifiedMeeting State-approved or State-recognized certification, licensing, registration or other comparable requirements that apply to the area in which the person is providing early intervention services.
ReferralOral or written action by an individual to direct information about a child or the childs family to another individual or entity, requesting that the receiving individual or entity take action on behalf of the child and family.
Service coordinationActivities carried out by a service coordinator in accordance with § 4226.52 (relating to service coordination activities) to assist and enable a child and the childs family to benefit from the rights and procedural safeguards and to receive the services that are authorized under this chapter.
Social workIncludes the following:(i) Making home visits to evaluate the living conditions of an infant or toddler with a disability and patterns of parent-child interaction.
(ii) Preparing a social or emotional developmental assessment of an infant or toddler with a disability within the family context.
(iii) Providing individual and family or group counseling to the parent and other family members of an infant or toddler with a disability, and appropriate social skill-building activities to the infant or toddler and the infant or toddlers parent.
(iv) Working to address those problems in the living situation of an infant or toddler with a disability and the infant or toddlers family (home, community, and any center where early intervention services are provided) that impede the maximum use of early intervention services.
(v) Identifying, mobilizing and coordinating community resources and services to enable an infant or toddler with a disability and the infant or toddlers family to receive maximum benefit from early intervention services.
Special instructionIncludes the following:(i) Designing the learning environments and activities that promote the acquisition of skills by an infant or toddler with a disability in a variety of developmental areas, including cognitive processes and social interaction.
(ii) Curriculum planning, including the planned interaction of personnel, materials and time and space, that leads to achieving the outcomes on the IFSP.
(iii) Providing the family with information, skills and support related to enhancing the skill development of the infant or toddler with a disability.
(iv) Working with the infant or toddler with a disability and family to enhance the infant or toddlers development.
Speech-language pathology servicesIncludes the following:(i) Identification of communicative or swallowing disorders and delays in development of communication skills, including the diagnosis and appraisal of specific disorders and delays in those skills.
(ii) Referral for medical or other professional services necessary for the habilitation or rehabilitation of communicative or swallowing disorders and delays in development of communication skills.
(iii) Provision of services for the habilitation, rehabilitation or prevention of communicative or swallowing disorders and delays in development of communication skills.
TrackingA systematic process to monitor the development of at-risk children to determine whether they have become eligible for early intervention services under this chapter.
Transportation and related costsIncludes the expenses incurred in travel (such as mileage or travel by taxi, common carrier or other means or tolls and parking expenses) that are necessary to enable an infant or toddler with a disability and the infant or toddlers family to receive another early intervention service.
Vision servicesIncludes the following:(i) Evaluation and assessment of visual functioning, including the diagnosis and appraisal of specific visual disorders, delays and abilities.
(ii) Referral for medical or other professional services necessary for the habilitation or rehabilitation of visual functioning disorders.
(iii) Communication skills training, orientation and mobility training for all environments, visual training, independent living skills training and additional training necessary to activate visual motor abilities.
§ 4226.6. Waiver of regulations.
(a) The Department may, upon application by a county MH/MR program and a showing of good cause as specified in subsection (b), waive specific requirements contained in this chapter if the waiver will not result in violation of another provision of Federal or State law and will not jeopardize receipt of Federal funding. A waiver may be granted only when the health, safety and well-being of infants and toddlers with disabilities and other children and their families and the quality of services are not adversely affected.
(b) The Department may waive one or more requirements of this chapter upon written request for a waiver from a county MH/MR program on a form prescribed by the Department, which includes:
(1) The specific regulatory sections for which a waiver is requested.
(2) A detailed description of the unusual or special circumstances that justify the waiver for the county MH/MR program.
(3) An explanation of how the county MH/MR program will ensure that the health, safety and well-being of infants and toddlers with disabilities and other children and their families will be protected if the waiver is granted.
(4) A description of how the county MH/MR program will meet the objective of the requirement in another way if the waiver is granted.
(c) A waiver granted under this section will be effective for a specified time period and may be revoked if the Department determines that the county MH/MR program has failed to comply with the conditions of the waiver.
(d) The purpose, applicability and definitions sections of this chapter may not be waived.
FINANCIAL MANAGEMENT
§ 4226.11. Financial administration.
Chapter 4300 (relating to county mental health and mental retardation fiscal manual) applies to the county MH/MR program for purposes of identifying allowable costs and for the general financial administration of early intervention services.
§ 4226.12. Medicaid waiver funds.
The county MH/MR program shall expend supplemental grant funds for the provision of early intervention services to infants and toddlers with disabilities and their families under the home and community waiver known as the Infant, Toddlers and Families Medicaid Waiver approved by the Department of Health and Human Services under section 1915(c) of the Social Security Act (42 U.S.C.A. § 1396n(c)) to the extent that eligible services and eligible infants and toddlers can be identified and the infants and toddlers parents consent to participate in the waiver.
§ 4226.13. Payor of last resort.
(a) Unless otherwise permitted or mandated by Federal law, State early intervention funds may not be used to satisfy a financial commitment for early intervention services if another public or private funding source is available to pay for the services.
(b) Unless otherwise permitted or mandated by Federal law, private insurance may be used with the consent of the parent to pay for early intervention services as long as such use will not result in a cost to the family, including but not limited to the following:
(1) A decrease in available lifetime coverage or any other benefit under an insurance policy.
(2) An increase in premiums or the discontinuation of the policy.
(3) An out-of-pocket expense such as the payment of a deductible amount in filing a claim.
(c) Services on the IFSP may not be denied or delayed because another public or private funding source, including Medicaid, is unavailable.
Cross References This section cited in 55 Pa. Code § 4226.14 (relating to documentation of other funding sources).
§ 4226.14. Documentation of other funding sources.
(a) The county MH/MR program shall develop and maintain a written policy that sets forth the procedures used to identify and exhaust all other public and private sources of funding for early intervention services, as required in § 4226.13 (relating to payor of last resort).
(b) The service coordinator shall maintain written documentation that attempts have been made to exhaust all other private and public funding sources available to an infant or toddler with a disability and the infant or toddlers family, as required by § 4226.13, in the infant or toddlers record, in accordance with § 4226.36(d) and (e) (relating to child records).
§ 4226.15. Interim payments.
(a) When necessary to prevent a delay in the receipt of early intervention services by an infant or toddler with a disability or the infant or toddlers family, State early intervention funds may be used to pay the provider of services pending reimbursement from the funding source that has ultimate responsibility for the payment.
(b) The county MH/MR program shall seek reimbursement from the responsible funding source to cover the interim payments made for early intervention services.
GENERAL REQUIREMENTS
§ 4226.21. Nondelegation of responsibilities.
(a) The county MH/MR program may contract with another agency for delivery of early intervention services under this chapter.
(b) If the county MH/MR program contracts with another agency as permitted in subsection (a), the county MH/MR program retains responsibility for compliance with the requirements of this chapter and shall ensure compliance by all agencies under contract to provide early intervention services.
§ 4226.22. Eligibility for early intervention services.
(a) The county MH/MR program shall ensure that early intervention services are provided to all children who meet one or more of the following eligibility criteria:
(1) A developmental delay, as measured by appropriate diagnostic instruments and procedures, of 25% of the childs chronological age in one or more of the developmental areas of cognitive development; physical development, including vision and hearing; communication development; social or emotional development; and adaptive development.
(2) A developmental delay in one or more of the developmental areas of cognitive development; physical development, including vision and hearing; communication development; social or emotional development; and adaptive development, as documented by test performance of 1.5 standard deviations below the mean on accepted or recognized standard tests for infants and toddlers.
(3) A diagnosed physical or mental condition which has a high probability of resulting in a developmental delay as specified in paragraphs (1) and (2), including a physical or mental condition identified through an MDE, conducted in accordance with § 4226.61 (relating to MDE), that is not accompanied by delays in a developmental area at the time of diagnosis.
(b) In addition to the diagnostic tools and standard tests specified in subsection (a)(1) and (2), informed clinical opinion shall be used to establish eligibility, especially when there are no standardized measures or the standardized measures are not appropriate for a childs chronological age or developmental area. Informed clinical opinion makes use of qualitative and quantitative information to assist in forming a determination regarding difficult-to-measure aspects of current developmental status and the potential need for early intervention.
Cross References This section cited in 55 Pa. Code § 4226.61 (relating to MDE); and 55 Pa. Code § 4226.72 (relating to procedures for IFSP development, review and evaluation).
§ 4226.25. At-risk children.
(a) A child identified as an at-risk child through the initial MDE conducted in accordance with § 4226.61 (relating to MDE) is eligible for tracking as specified in § 4226.26 (relating to tracking system).
(b) If a child is referred for an MDE to determine whether the child is an at-risk child and the family declines the MDE, with parental consent the child may be deemed eligible for tracking as specified in § 4226.26.
§ 4226.26. Tracking system.
(a) The county MH/MR program shall develop a system for tracking at-risk children.
(b) The tracking system shall include the following:
(1) Procedures for contacting the at-risk child and family by telephone, in writing or through a face-to-face meeting at least once every 3 months after the child is referred to the tracking system, unless an MDE conducted in accordance with § 4226.61 (relating to MDE) recommends and the parent agrees to more frequent contact. The parent may also request less frequent contact and may request no further contact.
(2) The use of a standardized developmental checklist as approved by the Department to review the childs development to determine the need for one of the following:
(i) Further tracking.
(ii) Further evaluation or reevaluation for eligibility for early intervention services.
(c) The county MH/MR program shall maintain written documentation of all contacts made through the tracking system in the childs record.
Cross References This section cited in 55 Pa. Code § 4226.25 (relating to at-risk children); 55 Pa. Code § 4226.92 (relating to parental consent); and 55 Pa. Code § 4226.93 (relating to parental right to decline service).
§ 4226.27. Monitoring responsibilities.
(a) The county MH/MR program shall be responsible for monitoring early intervention services, including service coordination, which the county MH/MR program provides directly or through contract, including services provided in another county or state.
(b) Monitoring shall include the measurement and assurance of compliance with this chapter and of the quality of services provided.
(c) The county MH/MR program shall conduct the monitoring required by this section on an ongoing basis but at least once every 12 months and maintain written documentation of the results of the monitoring for 4 years or until any audit or litigation is resolved.
§ 4226.28. Self-assessment reviews.
The county MH/MR program, in consultation with the local interagency coordinating council and the county MH/MR program advisory board, shall conduct an early intervention self-assessment review at least once every 3 years, including assessment of family satisfaction, using the tool provided by and adhering to the procedures established by the Department.
§ 4226.29. Preservice training.
(a) Early intervention personnel who work directly with at-risk children or infants and toddlers with disabilities, including personnel hired through contract, shall receive training before working alone with at-risk children or infants and toddlers with disabilities or their families in the following areas:
(1) Orientation to the early intervention service system of the Department, including the purpose and operation of the State and local interagency coordinating councils.
(2) The requirements of this chapter.
(3) The duties and responsibilities of their position.
(4) Methods for working with families utilizing family-centered approaches to encourage family involvement and consider family preferences.
(5) The interrelated social, emotional, health, developmental and educational needs of children.
(6) The availability and use of available local and State community resources.
(7) The principles and methods applied in the provision of services in the natural environment.
(8) The fiscal operations of the early intervention service system and the specific funding sources.
(9) Within 120 days of the date of hire, fire safety, emergency evacuation, first aid techniques and child cardiopulmonary resuscitation.
(b) Records of preservice training for all personnel shall be kept in the county MH/MR programs or providers personnel files for as long as the individual is employed or under contract or for 4 years, whichever is longer, or until any audit or litigation is resolved.
Cross References This section cited in 55 Pa. Code § 4226.30 (relating to annual training).
§ 4226.30. Annual training.
(a) Early intervention personnel who work directly with at-risk children and infants and toddlers with disabilities, including personnel hired through contract, shall have at least 24 hours of training annually, in addition to any preservice training, relevant to early intervention services, child development, community resources or services for children with disabilities. Specific areas shall include cultural competence, mediation, procedural safeguards and universal health procedures.
(b) The training specified in § 4226.29(a)(9) (relating to preservice training) shall be renewed annually, unless there is a formal certification for first aid or cardiopulmonary resuscitation by a recognized health source that is valid for more than 1 year, in which case the time period specified on the certification applies.
(c) Records of all annual training shall be kept in the county MH/MR programs or providers personnel files for as long as the person is employed or under contract or for 4 years, whichever is longer, or until any audit or litigation is resolved.
§ 4226.31. Child Protective Services Law.
County MH/MR programs and service providers and agencies that contract with county MH/MR programs to deliver early intervention services shall comply with the provisions of 23 Pa.C.S. Chapter 63 (relating to Child Protective Services Law) and regulations in Chapter 3490 (relating to protective services), regarding background clearances for all employees who will have direct contact with children.
§ 4226.32. Reporting and record retention.
(a) The county MH/MR program shall submit reports to the Department on a monthly, annual and periodic basis related to program operations, financial expenditures and disbursements, service delivery and demographic information, in the format and within the timelines as the Department may require.
(b) The Department will provide advance notice to the county MH/MR program of the specific reports to be submitted and the deadlines for submission.
(c) The county MH/MR program is responsible for keeping records and affording access to those records as the Department may find necessary to assure compliance with this chapter, the accuracy of reports or the proper disbursement of funds allocated under this chapter. Unless otherwise specified in this chapter for specific records, records shall be kept for 4 years or until any audit or litigation is resolved.
§ 4226.33. Traditionally underserved groups.
The county MH/MR program shall ensure that:
(1) Traditionally underserved groups, including minority, low-income and rural families, are provided the opportunity to be active participants in the local interagency coordinating councils and parent advisory groups and to participate in the development and implementation of the IFSPs for their infants and toddlers with disabilities.
(2) Families have access to culturally competent services within their local geographical areas.
§ 4226.34. Local interagency coordinating council.
The county MH/MR program shall ensure that:
(1) A local interagency coordinating council is established and maintained, which shall include parents and service providers and agencies.
(2) The local interagency coordinating council is authorized to advise and comment on the development of local interagency agreements.
(3) The local interagency coordinating council is authorized to communicate directly with the Department of Education, the Department of Health, the Department of Public Welfare and the State Interagency Coordinating Council regarding the local interagency agreement and any other matters pertaining to this chapter.
§ 4226.35. Confidentiality of information.
(a) The county MH/MR program shall ensure the protection of all personally identifiable information collected, used or maintained under this chapter.
(b) The county MH/MR program shall ensure that parents are informed of their rights to written notice of and written consent to the exchange of personally identifiable information among agencies in accordance with 34 CFR 300.560300.576 (relating to confidentiality of information); 34 CFR Part 99 (relating to family educational rights and privacy); and section 305(d) of the Early Intervention Services System Act (11 P. S. § 875-305(d)).
§ 4226.36. Child records.
(a) The county MH/MR program and every provider that contracts with a county MH/MR program to deliver early intervention services shall maintain a separate file for each child referred or accepted for tracking or early intervention services.
(b) Entries in a childs record shall be legible, dated and signed by the person making the entry.
(c) Each childs record shall contain, as applicable:
(1) Personally identifiable information.
(2) Intake information.
(3) Child evaluation and assessment information.
(4) IFSPs.
(5) Service support plans specifying the therapy services to be provided.
(6) Letters of medical necessity.
(7) Service coordination and service delivery activity logs.
(8) Health records.
(9) Notices issued under § 4226.95 (relating to prior notice).
(10) Other information, as specified in this chapter.
(d) Information in the childs record shall be kept for at least 4 four years or until any audit or litigation is resolved.
(e) A childs record shall be kept for a least 4 years following the childs discharge from service or until any audit or litigation is resolved.
Cross Reeferences This section cited in 55 Pa. Code § 4226.14 (relating to documentation of other funding sources).
PERSONNEL
§ 4226.51. Provision of service coordination.
(a) As soon as possible after the referral of a child and family to determine eligibility for early intervention services, the county MH/MR program, either directly or through contract, shall assign a service coordinator to the family.
(b) Each child and the childs family shall be provided with one service coordinator who is responsible for serving as the single point of contact in helping the parent to obtain the services and assistance needed and for the activities specified in § 4226.52 (relating to service coordination activities).
§ 4226.52. Service coordination activities.
Service coordination is an active, ongoing process that includes the following activities:
(1) Coordinating the performance of initial and ongoing evaluations and assessments.
(2) Referring at-risk children to the tracking system and tracking at-risk children.
(3) Facilitating and participating in the development, implementation, review and evaluation of IFSPs.
(4) Assisting the family of an infant or toddler with a disability in gaining access to the early intervention services and other services identified on the IFSP.
(5) Facilitating the timely delivery of early intervention services.
(6) Assisting the family in identifying available service providers and facilitating communication with and between the family and the service provider.
(7) Coordinating and monitoring the delivery of early intervention services.
(8) Informing the family of the availability of advocacy services.
(9) Assisting the family in arranging for the infant or toddler with a disability to receive medical and health services, if the services are necessary, and coordinating the provision of early intervention services and other services (such as medical services for other than diagnostic and evaluation purposes) that the infant or toddler needs or is being provided.
(10) Offering the family opportunities and support for the infant or toddler with a disability to participate in community activities with other children.
(11) Informing the family of appropriate community resources.
(12) Facilitating the development of a transition plan as part of the IFSP.
Cross References This section cited in 55 Pa. Code § 4226.56 (relating to effective date of personnel qualifications).
§ 4226.54. Early interventionist responsibilities.
An early interventionist is responsible for the following:
(1) Designing the learning environments and activities that promote the acquisition of skills by an infant or toddler with a disability in a variety of developmental areas, including cognitive processes and social interaction.
(2) Providing the family with information, skills and support related to enhancing the skill development of the infant or toddler with a disability.
(3) Working with the infant or toddler with a disability and family to enhance the infant or toddlers development.
Cross References This section cited in 55 Pa. Code § 4226.56 (relating to effective date of personnel qualifications).
§ 4226.56. Effective date of personnel qualifications.
Sections 4226.53 and 4226.55 (relating to service coordinator requirements and qualifications; and early interventionist qualifications) apply to service coordinators and early interventionists hired or promoted on and after July 1, 2003.
EVALUATION AND ASSESSMENT
§ 4226.61. MDE.
(a) Requirements for MDE. The county MH/MR program shall ensure that:
(1) Each child referred for evaluation receives a timely, comprehensive MDE and a family-directed assessment of the needs of the childs family to assist in the development of the child.
(2) The initial MDE is conducted by personnel independent of service provision.
(3) An MDE is conducted for each infant or toddler with a disability at least annually.
(4) A written MDE report is provided to the parent within 30 calendar days of the MDE.
(b) Evaluation and assessment of the child.
(1) The evaluation and assessment of each referred child shall:
(i) Be conducted by personnel trained to utilize evaluation and assessment methods and procedures.
(ii) Be based on informed clinical opinion.
(iii) Include the following:
(A) A review of pertinent records related to the childs current health status and medical history.
(B) An evaluation of the childs level of functioning in each of the developmental areas of cognitive development; physical development, including vision and hearing; communication development; social and emotional development; and adaptive development.
(C) An assessment of the unique needs of the child in terms of each of the developmental areas in clause (B), including the identification of services appropriate to meet those needs.
(2) The annual MDE will include the participation of the family, the service coordinator, anyone whom the parent would like to invite and at least one other qualified professional.
(3) The MDE required by this subsection may be based on review and analysis of existing documentation of medical history, if the parent agrees and the qualified professionals in exercising their judgment conclude that the elements specified in paragraph (1) can be determined through such review and analysis.
(c) Family assessment.
(1) The family assessment shall be family directed and designed to determine the resources, priorities and concerns of the family and to identify the supports and services necessary to enhance the familys capacity to meet the developmental needs of the child.
(2) A family assessment shall be voluntary on the part of the family.
(3) If a family assessment is carried out, the assessment shall:
(i) Be conducted by personnel trained to utilize assessment methods and procedures.
(ii) Be based on information provided by the family through a personal interview.
(iii) Incorporate the familys description of its resources, priorities and concerns related to enhancing the childs development.
(d) Timelines.
(1) Except as provided in paragraph (2), the initial MDE of each child (including the family assessment) shall be completed within sufficient time to enable an IFSP to be developed within the 45-day time period in § 4226.24(g) (relating to comprehensive child find system).
(2) The county MH/MR program shall develop procedures to ensure that if exceptional circumstances make it impossible to complete the initial MDE, including the family assessment, within the timeline specified in paragraph (1) (for example, if a child is ill), the county MH/MR program will do the following:
(i) Document those circumstances in the childs record.
(ii) Develop and implement an interim IFSP consistent with § 4226.76 (relating to provision of services before MDE is completed).
Cross References This section cited in 55 Pa. Code § 4226.22 (relating to eligibility for early intervention services); 55 Pa. Code § 4226.24 (relating to comprehensive child find system); 55 Pa. Code § 4226.25 (relating to at-risk children); 55 Pa. Code § 4226.26 (relating to tracking system); 55 Pa. Code § 4226.71 (relating to general); 55 Pa. Code § 4226.72 (relating to procedures for IFSP development, review and evaluation); 55 Pa. Code § 4226.73 (relating to participants in IFSP meetings and periodic reviews); 55 Pa. Code § 4226.76 (relating to provisions of services before MDE is completed); 55 Pa. Code § 4226.92 (relating to parental consent); and 55 Pa. Code § 4226.100 (relating to parental rights in due process hearings).
§ 4226.62. Nondiscriminatory procedures.
Each county MH/MR program shall adopt nondiscriminatory procedures for the evaluation and assessment of children and families that ensure, at a minimum, that:
(1) Tests and other evaluation materials and procedures are administered in the native language of the parent, unless it is clearly not feasible to do so.
(2) Assessment and evaluation procedures and materials are selected and administered so as not to be racially or culturally discriminatory.
(3) No single procedure is used as the sole criterion for determining a childs eligibility under this chapter.
(4) Evaluations and assessments are conducted by qualified personnel.
Cross References This section cited in 55 Pa. Code § 4226.24 (relating to comprehensive child find system).
IFSPs
§ 4226.71. General.
(a) Each county MH/MR program shall adopt policies and procedures regarding IFSPs.
(b) The IFSP shall:
(1) Be developed in accordance with § § 4226.72 and 4226.73 (relating to procedures for IFSP development, review and evaluation; and participants in IFSP meetings and periodic reviews).
(2) Be based on the evaluation and assessment described in § 4226.61 (relating to MDE).
(3) Include the matters specified in § 4226.74 (relating to content of the IFSP).
(4) Be developed prior to funding source decisions.
This section cited in 55 Pa. Code § 4226.24 (relating to comprehensive child find system); 55 Pa. Code § 4226.71 (relating to general); and 55 Pa. Code § 4226.75 (relating to implementation of the IFSP).
§ 4226.73. Participants in IFSP meetings and periodic reviews.
(a) Each initial meeting and each annual meeting to evaluate the IFSP shall include the following participants:
(1) The parent of the infant or toddler with a disability.
(2) Other family members, as requested by the parent, if feasible to do so.
(3) An advocate or person outside of the family, if the parent requests that the person participate.
(4) The service coordinator who has been working with the family since the initial referral for evaluation, or who has been designated by the county MH/MR program to be responsible for implementation of the IFSP.
(5) A person directly involved in conducting the evaluations and assessments in § 4226.61 (relating to MDE).
(6) Persons who will be providing services to the infant or toddler with a disability or family, as appropriate.
(b) If a person listed in subsection (a)(5) is unable to attend a meeting, arrangements shall be made for the persons involvement through another means, including one or more of the following:
(1) Participating in a telephone conference call.
(2) Having a knowledgeable authorized representative attend the meeting.
(3) Making pertinent records available at the meeting.
(c) Each periodic review shall include the participation of persons listed in subsection (a)(1)(4). If conditions warrant, provisions shall be made for the participation of other representatives identified in subsection (a).
Cross References This section cited in 55 Pa. Code § 4226.74 (relating to content of the IFSP).
PROCEDURAL SAFEGUARDS
§ 4226.91. General responsibility for procedural safeguards.
A county MH/MR program is responsible for adopting procedural safeguards that meet the requirements of this chapter, except § § 4226.101 and 4226.102 (relating to impartial hearing officer; and convenience of proceedings; timelines).
§ 4226.92. Parental consent.
(a) The following requirements apply for parental consent:
(1) The parent shall be fully informed of all information relevant to the activity for which consent is sought, in the parents native language.
(2) The parent shall be informed and agree in writing to the carrying out of the activity for which consent is sought, and the consent form shall describe that activity and list the records (if any) that will be released and to whom.
(3) The parent shall be informed that the granting of consent is voluntary on the part of the parent and may be revoked at any time.
(b) Written parental consent shall be obtained before:
(1) Conducting the initial evaluation and assessment under § 4226.61 (relating to MDE).
(2) Referring an at-risk child to the tracking system under § 4226.26 (relating to tracking system).
(3) Determining eligibility for Medicaid waiver services in accordance with § 4226.23 (relating to eligibility for Medicaid waiver services).
(4) Initiating or changing early intervention services.
(c) Before an early intervention service is provided or changed, the contents of the IFSP shall be fully explained to the parent. If the parent does not consent to the delivery of a particular early intervention service or withdraws consent after first providing it, that service may not be provided. Those early intervention services to which the parent consented shall be provided. If the parent does not consent to a proposed change that reduces or terminates early intervention services, the requirements of § 4226.103 (relating to status of a child during proceedings) apply.
(d) If the parent does not consent, the county MH/MR program shall make reasonable efforts to ensure that the parent:
(1) Is fully aware of the nature of the evaluation and assessment or the services that would be available.
(2) Understands that the child will not be able to receive the evaluation and assessment or services unless consent is given.
§ 4226.93. Parental right to decline service.
(a) The parent of an infant or toddler with a disability may determine whether to accept or decline any early intervention service offered to the infant or toddler or the family and may decline a service after first accepting it, without jeopardizing the provision of other early intervention services.
(b) The parent of an at-risk child may accept or decline referral of the child to the tracking system under § 4226.26 (relating to tracking system) without jeopardizing the referral at a later time.
§ 4226.94. Opportunity to examine records.
In accordance with the confidentiality procedures in Federal regulations in 34 CFR 300.560300.576 (relating to confidentiality of information), the parent of a child referred or eligible for tracking or early intervention services shall be afforded the opportunity to inspect and review records relating to evaluations and assessments, eligibility determinations, development and implementation of IFSPs, individual complaints dealing with the child and any other records about the child and the family.
§ 4226.95. Prior notice.
(a) Written prior notice shall be given to the parent of a child referred or eligible for tracking or early intervention services before a county MH/MR program proposes, or refuses, to initiate or change the identification, evaluation or placement of the child, or the provision of early intervention services to the child and the family.
(b) The notice shall be in sufficient detail to inform the parent about the following:
(1) The action that is being proposed or refused.
(2) The reasons for taking the action.
(3) The right to request one or all of the following, including a description of the procedures and rights that apply to each:
(i) Conflict resolution, as described in § 4226.97 (relating to conflict resolution).
(ii) Mediation, as described in § 4226.98 (relating to mediation).
(iii) A due process hearing, as described in § 4226.99 (relating to due process procedures).
(4) The right to file a complaint with the Department, including a description of how to file a complaint and timelines for filing the complaint.
(c) The notice shall be:
(1) Written in language understandable to the general public.
(2) Provided in the native language of the parent, unless it is clearly not feasible to do so.
(d) If the native language of the parent is not a written language, the county MH/MR program shall take steps to ensure that:
(1) The notice is translated orally or by other means to the parent in the parents native language.
(2) The parent understands the notice.
(3) Written evidence that the requirements of this subsection have been met is maintained in the childs record.
Cross References This section cited in 55 Pa. Code § 4226.95 (relating to prior notice); and 55 Pa. Code § 4226.97 (relating to conflict resolution).
§ 4226.99. Due process procedures.
Each county MH/MR program shall implement procedures to ensure that the resolution of requests for due process hearings by parents concerning any of the matters in § 4226.95(a) (relating to prior notice) on behalf of an individual child is not delayed.
Cross References This section cited in 55 Pa. Code § 4226.95 (relating to prior notice); 55 Pa. Code § 4226.97 (relating to conflict resolution); and 55 Pa. Code § 4226.98 (relating to mediation).
§ 4226.100. Parental rights in due process hearings.
(a) Each county MH/MR program shall ensure that the parents of children referred or eligible for tracking or early intervention services are informed of the rights in subsection (b) in each due process hearing requested to resolve any of the matters in § 4226.95(a) (relating to prior notice) on behalf of an individual child.
(b) A parent who is a party to a due process hearing has the following rights:
(1) To obtain an independent MDE conducted in accordance with § 4226.61 (relating to MDE) at no cost if the parent disagrees with the results of the MDE obtained through the county MH/MR program and the hearing officer determines that the MDE is needed to assist in the resolution of the dispute.
(2) To be accompanied and advised by counsel and by individuals with special knowledge or training with respect to early intervention services.
(3) To present evidence and confront, cross-examine and compel the attendance of witnesses.
(4) To prohibit the introduction of any evidence at the proceeding that has not been disclosed to the parent at least 5 days before the proceeding.
(5) To obtain a written or electronic verbatim transcription of the proceeding.
This section cited in 55 Pa. Code § 4226.91 (relating to general responsibility for procedural safeguards).
§ 4226.102. Convenience of proceedings; timelines.
(a) The due process hearing shall be carried out at a time and place that is reasonably convenient to the parent.
(b) The due process hearing shall be conducted and a written decision mailed to each party no later than 30 days after the parents request for a hearing is received by the county MH/MR program.
Cross References This section cited in 55 Pa. Code § 4226.91 (relating to general responsibility for procedural safeguards).
§ 4226.103. Status of a child during proceedings.
(a) During the pendency of a conflict resolution, mediation or due process proceeding, unless the county MH/MR program and parent of the infant or toddler with a disability otherwise agree, the infant or toddler shall continue to receive the early intervention services currently being provided.
(b) If the complaint involves an application for initial services under this chapter, the infant or toddler with a disability shall receive those services that are not in dispute.
Cross References This section cited in 55 Pa. Code § 4226.92 (relating to parental consent).
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